Chronic Fatigue Syndrome – The Less Understood Condition In Home Care

Chronic Fatigue Syndrome – The Less Understood Condition In Home Care

Chronic Fatigue Syndrome – The Less Understood Condition In Home Care
NDIS Provider
Home Care Package Provider

Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis, is a syndrome that causes persistent fatigue that does not go away with sleep or rest. It affects around 250,00 Australians, from Bondi Junction to Perth, with one in four having to rely on home care services as a result of their persistent exhaustion.

But for those Australians requiring home care services, many are struggling to receive the financial support they need from government funded schemes.

Getting Support

Kristel Wood, who suffers from Chronic Fatigue Syndrome, explains that she has tried to receive support from the National Disability Insurance Scheme (NDIS) three times now, but each time she has been rejected.

When asked how the support could benefit her, she said, “I could focus more on work… I could get regular specialist home visits from a physio. I wouldn’t have the constant stress of playing catch-up with basic medical expenses. I’d be able to try treatment options that are currently inaccessible to me. Right now I’m barely coping.”

Mrs Wood explained the reason she was denied support was that her condition was not a “permanent illness”, and that “exercise and cognitive behavioural therapy are effective treatments”.

President of Chronic Fatigue Syndrome Australia, Penelope McMillan, described the situation as “heartbreaking.”

“We have members who are bed-bound and they can’t access the NDIS,” she said.

“We have people in distressing circumstances and there’s just no help. The legislation was quite clear that the NDIS should be based on need, but the National Disability Insurance Agency has created a procedure that discriminates.”

The Pace trial

While exercise and cognitive behavioural therapy are the typically prescribed treatments for those with Chronic Fatigue Syndrome, recent studies have revealed that these may not, in fact, be the best course of action.

A trial known as the Pace trial was conducted in the UK over five years and published back in February 2011. The trial initially claimed that 22% of participants recovered from Chronic Fatigue Syndrome as a result of exercise and cognitive behavioural therapy.

However, through the use of freedom of information requests, patient groups discovered that the term “recovered” could be seen as misleading as a result of the definition being altered during the trial to also encompass those who were still relatively ill.

Furthermore, when patients of the study were surveyed, 74% of people with Chronic Fatigue Syndrome who participated in the exercise program reported that their condition had in fact worsened.

A psychological or biological condition?

The study has further fuelled the continued debate or whether or not Chronic Fatigue Syndrome is a psychological condition or a biological one.

A study by Queensland’s Griffith University released a study suggesting that those with Chronic Fatigue Syndrome suffer from it as a result of non-functioning calcium receptors in their immune cells.

“The research team, led by Professor Sonya Marshall-Gradisnik and Professor Don Staines, have identified a dysfunctional cell receptor in the immune system which seems to be at the core of the problem,” Science Minister Leanne Enouch said.

Regardless of the level of care you require, our fully trained and dedicated team at Dementia Caring is on-hand to provide the help and services you need. Get in touch with us today for your free needs assessment.

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Happy Friday HC fam! Earlier this week one of our NSW Relationship Managers Zoe attended a unique networking event hosted by Lift Off El with an out-of-this-world space theme. Events like these are an invaluable way for Home Caring to connect with other industry providers and allied health professionals, expanding our reach and building meaningful partnerships within the community. Through these connections we create a more integrated environment where everyone plays a role in supporting each other and elevating the quality of care.

At Home Caring we’re constantly working on initiatives that foster a connected community. By joining forces with organisations and healthcare providers, we not only increase our brand’s visibility but strengthen our commitment to a truly inclusive care network. Together we’re building a supportive landscape where collaboration is key and everyone involved can contribute to a thriving, compassionate community 🩵

Happy Friday HC fam! Earlier this week one of our NSW Relationship Managers Zoe attended a unique networking event hosted by Lift Off El with an out-of-this-world space theme. Events like these are an invaluable way for Home Caring to connect with other industry providers and allied health professionals, expanding our reach and building meaningful partnerships within the community. Through these connections we create a more integrated environment where everyone plays a role in supporting each other and elevating the quality of care.

At Home Caring we’re constantly working on initiatives that foster a connected community. By joining forces with organisations and healthcare providers, we not only increase our brand’s visibility but strengthen our commitment to a truly inclusive care network. Together we’re building a supportive landscape where collaboration is key and everyone involved can contribute to a thriving, compassionate community 🩵
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Here at Home Caring we believe that the strength of our team lies in the well-being of each individual. We know that support care work can be both rewarding as well as challenging and we’re committed to creating a supportive environment that uplifts every staff member. By fostering a sense of connection through regular team bonding exercises, we’re building more than just a team – we’re building a community that stands together. These moments of laughter, camaraderie and support remind us that no one has to go it alone, strengthening each member’s commitment to our shared mission.

Caring for others starts with caring for ourselves and Home Caring is dedicated to ensuring our team feels valued and supported. We know that prioritising mental health is key to sustainable careers, so we actively nurture an environment where team members feel empowered and appreciated. These bonding experiences not only enrich our work culture but also help prevent the isolation that can sometimes accompany support care roles. By putting our staff’s well-being first, we’re able to provide the very best care to our clients – together, as a resilient, united team 🩵 

#teamworkmakesthedreamwork #homecaringaustralia

Here at Home Caring we believe that the strength of our team lies in the well-being of each individual. We know that support care work can be both rewarding as well as challenging and we’re committed to creating a supportive environment that uplifts every staff member. By fostering a sense of connection through regular team bonding exercises, we’re building more than just a team – we’re building a community that stands together. These moments of laughter, camaraderie and support remind us that no one has to go it alone, strengthening each member’s commitment to our shared mission.

Caring for others starts with caring for ourselves and Home Caring is dedicated to ensuring our team feels valued and supported. We know that prioritising mental health is key to sustainable careers, so we actively nurture an environment where team members feel empowered and appreciated. These bonding experiences not only enrich our work culture but also help prevent the isolation that can sometimes accompany support care roles. By putting our staff’s well-being first, we’re able to provide the very best care to our clients – together, as a resilient, united team 🩵

#teamworkmakesthedreamwork #homecaringaustralia
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Happy Friday HC fam! 🎉

Recently we had the pleasure of hosting a fantastic networking event at our SIL home in Liverpool for like minded providers and their teams. The open and heartfelt conversations made it truly special reminding us of the genuine connections that bring our community together.

Our Liverpool SIL home embodies the essence of what we strive for—calm, warmth, and a space that feels like home. A huge thank you to Sharmila our Home caring Liverpool director for hosting and to Karen Lorenzon from @konnect_fest our beloved “Pink-Haired Lady,” for her amazing collaboration. We’re incredibly grateful to be part of such a supportive and inspiring community.

Here’s to more meaningful gatherings and connections ahead! 🩵

Happy Friday HC fam! 🎉

Recently we had the pleasure of hosting a fantastic networking event at our SIL home in Liverpool for like minded providers and their teams. The open and heartfelt conversations made it truly special reminding us of the genuine connections that bring our community together.

Our Liverpool SIL home embodies the essence of what we strive for—calm, warmth, and a space that feels like home. A huge thank you to Sharmila our Home caring Liverpool director for hosting and to Karen Lorenzon from @konnect_fest our beloved “Pink-Haired Lady,” for her amazing collaboration. We’re incredibly grateful to be part of such a supportive and inspiring community.

Here’s to more meaningful gatherings and connections ahead! 🩵
... See MoreSee Less

Last Friday our Home Caring Campbelltown team enjoyed a memorable day at the zoo with even the rain holding off for us! Our cherished clients joined us for a day packed with smiles, laughter and the simple joy of being together. From the moment we arrived there was a buzz of excitement as we explored the sights, enjoyed the animals and soaked up the sunshine. It was one of those days you look back on and remember fondly, where every moment felt special and full of connection.

These outings are what we here at Home Caring do best-creating memories and sharing experiences that add quality to life. Were your trusted locals taking you beyond the everyday, bringing a sense of adventure and crafting experiences that leave a lasting impact. Whether its a day at the zoo or simply a stroll in the park were here to make each day brighter, building connections and making every moment count for our clients 🩵

#welovewecare

Last Friday our Home Caring Campbelltown team enjoyed a memorable day at the zoo with even the rain holding off for us! Our cherished clients joined us for a day packed with smiles, laughter and the simple joy of being together. From the moment we arrived there was a buzz of excitement as we explored the sights, enjoyed the animals and soaked up the sunshine. It was one of those days you look back on and remember fondly, where every moment felt special and full of connection.

These outings are what we here at Home Caring do best-creating memories and sharing experiences that add quality to life. We're your trusted locals taking you beyond the everyday, bringing a sense of adventure and crafting experiences that leave a lasting impact. Whether it's a day at the zoo or simply a stroll in the park we're here to make each day brighter, building connections and making every moment count for our clients 🩵

#welovewecare
... See MoreSee Less

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